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Thursday, May 28

Ugh. Yuck. Blah.

This is kind of how I've been feeling, hence the lack of blogs. This whole IEP process is seriously for the birds, and I've had about all I can take. I think that's what school districts bank on. They string you along, violate your rights, press you to your limit so you'll just finally give up. I mean, how much fighting should you have to do, when you have a child with a known disability, to simply have an evaluation. I mean, that's what we are fighting over right now. Ridiculous? Absolutely!



Even though I am stressed out, verging on going crazy, and haven't slept in days, I'm not going to give up. Nope. Not gonna happen. Look at this boy:



Drew was so proud of his "Tower of Bananas." Look at that cute, messy little face. My sweet, little boy. He is growing each day, becoming so much more of a child than my little baby. He deserves to have every opportunity in the world. So, no matter how down I get, frustrated I am, long this process takes, in the end, everything is worth it to make sure he receives the services he needs.

*And a little shout out to Drew's Dad, who is going though this, every single step, with me. Not every husband and dad would be as involved as he is. He is the rock when I am upset, the calm one when I am upset, the logical one when I am upset. I couldn't do this without him.

8 comments:

leah said...

It is so unfortunate that fighting for the best preschool placement is so very difficult. We actually just had a Jr. deaf club meeting that was on rights and advocacy for IEP plans. Keep up the good fight- I sincerely hope things all work out in the end!

Tom's mum said...

hi there, you two are doing such a great job for Drew. Maybe gives yourselves a coupls of days off from the fight to clear your heads. We found that when we did that in similar situations we were able to go back into the battle with added force :)

Vivie said...

Hey , saw ur last post just today - been having pc troubles - just persevere , and u'll succeed coz Drew will fuel u with courage.oh and take some break too...and a big shout out to Drew's Dad for always supporting u!

lots of warm Greek hugs!

Lucas'Mommy said...

You guys are so amazing, and I'm learning so much from you!

Just wanted to let you know that Life with Lucas has a new URL:

http://lifewithlucasrc.blogspot.com

Thanks!

Shelleyrae33 said...

I just found your blog. I have a 8 month old boy who is profoundly deaf. Your son's story gives me hope.

God bless,
Shelley

Visit me at http://lifeofstambaugh.blogspot.com

Sienna's mom said...

Hang in there! Keep up the fight. You are such great parents, you help me be a better advocate for my daughter.

Anonymous said...

Please e-mail me! I found your blog tonight while researching AVT options in Cols OH. My daughter will be 3 in Sept, and has moderate-severe bilateral hearing loss. We live in Hilliard and are dealing with many of the same issues you are dealing with - please e-mail me and I'll fill you in!
camille warren (at) hotmail (dot) com

Jillian's Dad said...

Wow, I cannot believe all of the trouble that you are having to go through in order to get the services that your son has a right to. It's stories like these that help me to realize how blessed I am to live where we do in Texas. The schools here have been phenomenal in providing my 6-year old daughter with all the services she needs.

All I can say is keep fighting on Drew's behalf. My daughter was bilatteraly implanted at 13 months and is now about to enter 1st grade and she is doing so well. The local day school for the deaf was such a huge help when she was 3 and 4. When things actually start happening and he gets the services he needs you will be able to look back on it all and realize that it was well worth it. I promise!