tag:blogger.com,1999:blog-37382396.comments2023-12-20T21:58:03.184-05:00Turn On My Ears!Drew's Momhttp://www.blogger.com/profile/09785837091572603406noreply@blogger.comBlogger1304125tag:blogger.com,1999:blog-37382396.post-42560438259413509872023-12-20T21:58:03.184-05:002023-12-20T21:58:03.184-05:00Great blog I enjooyed readingGreat blog I enjooyed readingJoshua Poncehttps://joshuaponces.wordpress.com/noreply@blogger.comtag:blogger.com,1999:blog-37382396.post-16269821001020455822023-10-21T06:39:21.760-04:002023-10-21T06:39:21.760-04:00Great rread thank youGreat rread thank youQuotation Machinehttps://quotationmachine.tumblr.com/noreply@blogger.comtag:blogger.com,1999:blog-37382396.post-62146853310554872692023-08-16T19:21:55.262-04:002023-08-16T19:21:55.262-04:00Thiss is greatThiss is greatPensieri strani erihttps://ilpensatorelaowai.blogspot.com/noreply@blogger.comtag:blogger.com,1999:blog-37382396.post-12034665225398680792023-05-29T13:20:28.810-04:002023-05-29T13:20:28.810-04:00Appreciiate this blog postAppreciiate this blog postPeanut Butter Cookie Recipeshttps://www.cookiepins.com/peanut-butter-cookies/peanut_butter_oatmeal_raisin_cookies_14075186393.shtmlnoreply@blogger.comtag:blogger.com,1999:blog-37382396.post-57170528789442267432023-04-03T21:52:51.567-04:002023-04-03T21:52:51.567-04:00Could you repost the link please. Thank youCould you repost the link please. Thank youAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-37382396.post-2102746262053618022022-08-19T10:23:18.536-04:002022-08-19T10:23:18.536-04:00Good reeadGood reeadWasp Nest Removal Melbournehttps://www.bee-wasp-removal.com/us/bee-removal-florida/wasp-nest-removal-melbourne.shtmlnoreply@blogger.comtag:blogger.com,1999:blog-37382396.post-74779865462032364732021-10-10T21:19:48.183-04:002021-10-10T21:19:48.183-04:00Appreciate thiis blog postAppreciate thiis blog postZachary Carrhttps://www.zacharycarr.com/noreply@blogger.comtag:blogger.com,1999:blog-37382396.post-57181116697524948152018-09-07T09:19:39.756-04:002018-09-07T09:19:39.756-04:00thanks for info
nice blogthanks for info<br />nice blogswati pankaj gawandehttp://drsachdevasanjay.comnoreply@blogger.comtag:blogger.com,1999:blog-37382396.post-27443671991559972102017-09-03T06:39:21.434-04:002017-09-03T06:39:21.434-04:00This comment has been removed by a blog administrator.vaiyborahttps://www.blogger.com/profile/05095754542895387700noreply@blogger.comtag:blogger.com,1999:blog-37382396.post-33074871333037455152016-01-30T05:49:54.915-05:002016-01-30T05:49:54.915-05:00This comment has been removed by a blog administrator.DMM Jhonhttps://www.blogger.com/profile/04485413466562852725noreply@blogger.comtag:blogger.com,1999:blog-37382396.post-58512279898310999052015-10-20T16:52:38.638-04:002015-10-20T16:52:38.638-04:00Hi everyone,
We are sorry to not have responded s...Hi everyone,<br /><br />We are sorry to not have responded sooner. Thank you for the kind words, they mean so much! If anyone has a question at this point let us know and we will try to respond.Drew's Dadhttps://www.blogger.com/profile/03006819915992621173noreply@blogger.comtag:blogger.com,1999:blog-37382396.post-60441083073054152402015-10-20T16:48:30.866-04:002015-10-20T16:48:30.866-04:00Jenn,
Sorry for responding many months after your...Jenn,<br /><br />Sorry for responding many months after your comment. We are glad that you find Drew's story inspirational. If you have questions, please post them and we can try to respond here so that others can be helped also!Drew's Dadhttps://www.blogger.com/profile/03006819915992621173noreply@blogger.comtag:blogger.com,1999:blog-37382396.post-403701355581745392015-10-15T19:16:53.274-04:002015-10-15T19:16:53.274-04:00Your son is so inspirational. I have a 6 month old...Your son is so inspirational. I have a 6 month old son who is profound deaf due to a cmv infection. We are in process for cochlear implants. I'm alittle afraid of the operation and i'm super nervous. Do you have advice for me. You have so much experience for what I can see.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-37382396.post-35068237457367129782015-03-21T15:17:05.856-04:002015-03-21T15:17:05.856-04:00The overall evaluation for reading reads: "Pa...The overall evaluation for reading reads: "Paired with the KTEA-3, results suggest <a href="http://tinnitushelper.org/" rel="nofollow">gladys cobb</a><br />Anonymoushttps://www.blogger.com/profile/01620571915284805069noreply@blogger.comtag:blogger.com,1999:blog-37382396.post-79399353768200967252015-02-22T22:01:46.241-05:002015-02-22T22:01:46.241-05:00Hi! I just wanted to thank you for writing your bl...Hi! I just wanted to thank you for writing your blog and sharing your family's journey. My son was born this September and has been diagnosed with bilateral hearing loss, and we are pursuing cochlear implants. Reading your story has been so helpful and inspirational to me.<br />I p have so many questions, if you can email me at jennfortunato@hotmail.com<br /><br />Thank you!<br />JennJennifernoreply@blogger.comtag:blogger.com,1999:blog-37382396.post-21923899969642339832015-02-06T23:08:18.739-05:002015-02-06T23:08:18.739-05:00Thank you for this story ... so moving, and yes, I...Thank you for this story ... so moving, and yes, I've been there too. <br /><br />My "D Day" story is at https://parentingdeafandgifted.wordpress.com/2015/01/26/speech-bananas-and-moonbeams/<br /><br />JulietAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-37382396.post-58252169334698096252015-02-05T15:19:34.406-05:002015-02-05T15:19:34.406-05:00My son has hearing aids and the helmet fits fine. ...My son has hearing aids and the helmet fits fine. The problem we are having is the feedback. What can we do?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-37382396.post-46212986333271864112014-09-16T11:35:00.265-04:002014-09-16T11:35:00.265-04:00Hi there! My name is Heather and I was wondering i...Hi there! My name is Heather and I was wondering if you would be willing to answer my question about your blog! My email is Lifesabanquet1 AT gmail DOT com :-) I greatly appreciate it!Heatherhttps://www.blogger.com/profile/04104895709983001125noreply@blogger.comtag:blogger.com,1999:blog-37382396.post-44761215414604616352014-03-20T02:19:23.845-04:002014-03-20T02:19:23.845-04:00Hi Katie i was trying to email you but it permanen...Hi Katie i was trying to email you but it permanently failed. Your story engages me because I am experiencing the similar condition as you. I am 19 and my hearing decrease every year and now it is in profound state. I would appreciate it a lot if you could share how you get through it as I am having a very though time in dealing with my hearing loss. Thank you anyway!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-37382396.post-84560011606030640542014-02-17T14:03:44.817-05:002014-02-17T14:03:44.817-05:00thanks so much for the extra tips! I really appre...thanks so much for the extra tips! I really appreciate it, and love reading your posts! One more question, since you mentioned Drew had some trouble hearing on the field last year - does he wear the FM and the coach use the microphone when he practices/plays? Thanks!!!Anonymoushttps://www.blogger.com/profile/04356036111501743757noreply@blogger.comtag:blogger.com,1999:blog-37382396.post-83903240112300352442014-01-21T16:07:02.245-05:002014-01-21T16:07:02.245-05:00Hi Sara, Drew has worn the same helmet each of the...Hi Sara, Drew has worn the same helmet each of the last three seasons. It continues to work really well. He actually only wears the helmet for batting; he wears his baseball hat in the field. He loves baseball (basketball is his favorite sport; baseball is second). We did have a little bit of an issue with him hearing well in the field last year - he was in a more competitive league, and sometimes he couldn't hear his coach. We had a baseball program put on his CI that made the hearing "bubble" much larger and he seemed to do much better with that. We also changed his mic covers frequently from all of the dirt on the baseball fields. Other than that, he's just your average seven year old playing baseball! Good Luck!Drew's Momhttps://www.blogger.com/profile/09785837091572603406noreply@blogger.comtag:blogger.com,1999:blog-37382396.post-60990025598061452522014-01-20T15:08:26.448-05:002014-01-20T15:08:26.448-05:00so glad i found this! you are 2 years ahead of us ...so glad i found this! you are 2 years ahead of us :)<br />Our daughter was born bilaterally profoundly deaf in 2008 also due to Connexin 26. 1 ear implanted (hopefully 2 soon!)I wish they would have done bilateral implants, but her doctor wound't do it. But no complaints bc she's doing great! Taking kindergarten by storm and hoping to sign up for tee-ball this spring! Thanks for the info re: helmets! Does your son wear the hard helmet both for batting and fielding? I see this post is a few years old - how has he done with baseball? Any advise? Thanks so much!!!Anonymoushttps://www.blogger.com/profile/04356036111501743757noreply@blogger.comtag:blogger.com,1999:blog-37382396.post-51206781028262254842013-07-30T11:13:24.388-04:002013-07-30T11:13:24.388-04:00We use toupee tape and a headband and never take t...We use toupee tape and a headband and never take them off :)Miss Kat's Parentshttps://www.blogger.com/profile/08535904035034717518noreply@blogger.comtag:blogger.com,1999:blog-37382396.post-5462311098766049682013-06-29T06:42:36.001-04:002013-06-29T06:42:36.001-04:00Dear Drew's Mom,
Since I could not find a way...Dear Drew's Mom,<br /><br />Since I could not find a way to e-mail you directly, I hope that you will read this comment eventually. Although we are thousands of miles away (me being from south-east Europe), Drew's story and your blog have brought about some drastic changes in the life of my family and I couldn't thank you enough for it. My daughter, Mina, was also diagnosed with profound hearing loss, and at the age of 17 months has been implanted unilaterally with Nucleus 5 system (in our country, we still do not have bilateral implantations, which is a shame). There has been 2 years since the activation and she still has little progress. Her reaction to sound is excellent, so is her understanding and receptive language, but she only has 5-7 words which she uses and not all of them are pronounced properly. I felt even long ago that there is something wrong with the therapy and feared that the fact that we almost did nothing at home brought about this result. However, and you would not beleive this, we were advised so by the therapist. She had therapy 5 days a week, for about half an hour, with no parent participation. During the therapy she would have to sit across the table from the therapist and repeat several ling sounds,animal sounds etc. over and over again. With no engagement in the meaningful activity. She only had 4 mappings during this two years, all of which lasted for about 10 minutes, and has only been to the sound booth once doing pure tone testing for about 5 minutes. Audiograph showed that she can hear at 30dB at all frequencies. They considered that to be enough and that there is no need for further mapping or booth testing. Last month several important things had happened. We met and started working with SLT therapist, who has years of experience working in Australia (but her native language is Serbian, like ours, which is great). Mina got the skin infection at the place of magnet, since the magnet was too strong and irritated her skin, so we had to visit the surgeon who implanted her for a proper therapy. He recommended a CT scan to check if everything is ok inside (and it is ok), but also a second CI clinic with additionally educated CI team of audiologists and therapists. We had the initial meeting with them, as well as the assessment meetings with SLT and psychologist, and audiologist. In two days we will have a new mapping and booth testing and they also recommended mapping to be done once a month in the following period in order to fix the map and compensate for having too little mappings. <br />Several nights ago, I came across your blog and couldn't stop reading all night. It was an epiphany. I realized - this is how the therapy and proper mapping and follow up should look like. But at the same time I couldn't stop crying thinkg what have I done to my child? How much I have hindered her language development by following the therapist's lead and not trying to explore more. It is my fault, ours as parents, that we trusted the wrong people, but it's to Mina's disadvantage. Your blog has opened a whole new world for us, and we made some important changes. We also made a decision to advocate for our child and not to settle with anything less in quality of service that what Drew or any other child like him has. <br />All the best, and thank you immenselyAnonymoushttps://www.blogger.com/profile/13025339698799092783noreply@blogger.comtag:blogger.com,1999:blog-37382396.post-65905416236595649072013-05-28T04:04:18.160-04:002013-05-28T04:04:18.160-04:00This comment has been removed by a blog administrator.Anonymousnoreply@blogger.com